Greensboro, NC -- After six weeks in the hospital, a baby boy with a rare muscular disease has moved back home.
Logan Forbis was born with Myotubular Myopathy.
The first ten weeks of his life were spent in the hospital.
He couldn't cry, couldn't swallow, and couldn't move on his own. Logan's parents, Kathleen and Brian Forbis, had to learn to care for their son with special needs before they could bring him home.
Logan was doing well at home with his parents until about six weeks ago, when he developed pneumonia.
Logan was hospitalized four times. At one point, both of his lungs collapsed. His parents almost lost him.
"If it weren't for the support of everybody, we would be so lost. It's not just the financial support, it's the emotional support. And just having everybody be there for us, we would be so lost without it," said Kathleen Forbis. "It feels amazing to have our baby home again."
After six weeks in the hospital, a tracheotomy, and a million dollars worth of medical bills, Brian and Kathleen got to bring little Logan home on Wednesday.
Logan came home with more responsibilities than any new parent could imagine.
He needs nursing care around the clock.
Along with a mobile above his bed, there's also a ventilator. Instead of a bouncy seat, there's a humidifier.
There's no strategy to wean him off a pacifier. Instead, his parents are learning how to change out his trach.
But when they see their little boy smile, move his arms or his legs, it makes it all worth it. Even a new tooth is cause for celebration.
"He is such a blessing. Regardless of what he has been through, he has smiled through everything and he's just a happy baby. And I wouldn't take any of that back," said Forbis. "This is our new life."
As for his Logan's prognosis, there really isn't one.
There are only about 300 cases of Myotubular Myopathy in the United States, so doctors still know very little about the disease.
Logan's parents have set up a fund for him. To donate, you can call 336-697-0572 or mail a check made out to Logan Forbis to this address:
Alamance Community Fire Department
4108 Presbyterian Road
Greensboro, NC 27406
There is also a hot dog sale to benefit Logan this Saturday.
Hot Dog Benefit
McLeansville Fire Station 47
5326 Frieden Church Road
11am until 2pm
Hot dogs $1.50
All proceeds will help pay for Logan's medical bills.
WFMY News 2